Robert,

It pains me to read your journey. I wish your hormone therapy will finally keep your cancer clean and you can move on with your life.
I am just another person started with this journey. My first PSA from Nov, 2023 was 5.3. I had my first Transperineal biopsy in Feb, 2024. All 26 core were benign. Three months later from last week, my PSA is now 7.5. I have another PSA and MRI scheduled in August with UCLA. I am very nervous to see how bad my new results will be, then a new biopsy will be done then.
What I have learned from you and many others, and I truly appreciate your sharing of your experience:
1. Make sure all tests and treatments are done in a Center of Excellence facility.
2. After biopsy, seek second opinion of the pathology.
3. Request a generic test such as Decipher to check on aggressiveness.
4. Request PSMA Pet scan to check on spreads.
5. Request bone scan, CT scan.
6. Once a treatment is decided, seek another second opinion, maybe from a new Medical Oncologist to review again if everything is considered thoroughly.
If you can share what other steps needed so others like me, will not miss any other important pitfalls, it would be greatly appreciated.