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CA19 increase, gaining weight and feeling better - Confused

Pancreatic Cancer | Last Active: Jun 3 6:18pm | Replies (8)
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@nancyjane1

My CA19-9, which I have had done 13 times!, shows a lot of fluctuations from a high of 496 to a low of 28. This past month it went up 40 points. I had a recent PetScan (#3) and it showed great improvement with no new mets. I am currently taking a chemo break to restore my red blood count after 12 5FU and 14 Abraxane/gem sessions. So, I am eating well, exercising every day, sleeping great and being checked by oncology every 4 weeks. I trust the PetScan more than the C19-9 but will continue to have it monitored to check the trend of the scores. It’s hard to know what NOT to worry about, right?

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Replies to "My CA19-9, which I have had done 13 times!, shows a lot of fluctuations from a..."
maxmom | @maxmom | May 27 11:04am

I hope you are right. I guess I was most concerned because the Gem/Abrax was supposed to be 3 weeks on/1 off but after one round the platelets were too low so oncologist switched to every other week. But we will have CT Scan and Pet at Mayo in June so I guess we will know more than.

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