← Return to newly diagnosed pNET on tail of pancreas

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@kim1965

@cangre82, a lot of us have done your path, and we tell you our story and hope that it gives you some assistance in your case. My wife also was diagnosed with a tumor a bigger than yours on the pancreas, that spread to the liver with too many tumors to count. In oncologist had only had 2 cases of NET in his career, and he is about to retire. He recommended her to a multi-disciplinary team with a NET specialist part of a team. They immediately started her plan, after confirming with a biopsy. Since she was not eligible for surgery, she did 9 months of CAP/TEM which greatly reduce all tumors in both areas. This allowed surgery to remove tail of pancreas, gall bladder, and debulk as many tumors on liver as possible. She also did 4 treatments of PRRT that reduce tumors on liver to a much more healthy state. So for now, she is a good place being monitored every 3 months. So 3 suggestions for you, try to get a team similar to above, become as educated as you can about NET, and join the fight against NET with the rest of us. We all got this! 🙏

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Replies to "@cangre82, a lot of us have done your path, and we tell you our story and..."

I’m going to be starting PRRT Lutathera treatment in August I’m concerned about the radiation part can you tell me more about your experience. Thank you