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Autoimmune Diseases and Fatigue
Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)Comment receiving replies
At the risk of being reported or ??, I have to share a little here. I recently went through months of torturous insomnia. I don't know if it is related to my autoimmune polyneuropathy--I seem to have autonomic involvement along with the motor neuron degeneration, sensory stuff too--I figure every thing is part of the disease--but it was a devastating development. Zero sleep at times, sometimes a few hours, or usually a couple zzz's after hours of wakefulness, then awake again until morning, trying to grab a couple hours before noon. I was very compromised, brain worse than ever. Yes, that bad hangover feeling on top of cognitive problems and physical exhaustion. Along with the usual fatigue, I was a zombie and unable to do anything but lie around. Hard to even meditate or read. "We" tried drug after drug, some very scary heavy-duty ones. Occasionally one would work a couple times, only to fail shortly thereafter. It was absolutely nightmarish, unreal trying to slog though day after day. And then a friend gave me some Simpson oil, which is a medical cannabis concentrate developed by a guy for his skin cancer (cured it). I had zero confidence it would help wit sleep. Then...first night--zzzzz. All night. Second night-- sleep. It has been months and is still helping. I sleep!!! I'm going to switch to a more CBD form as it has no "high" at all, just good cannibinoids. I actually don't get high from the full flower concentrate I use now for some reason (it is slow acting, taken orally couple hours before bed), but don't want or need the THC it contains. Anyway, it may not be for everybody, obviously so if medical cannabis is not yet legal where you live. I might add that the pain and nasty inflammation in my knees, which are scheduled for replacement surgery this year, is gone, and I have cut narcotics from Fentanyl patch and 40 mg oxycodone every day to no Fentanyl and maybe 10 mg a day oxydone a couple days a week. Mostly taken now only for longstanding crumbling spine and stenosis. My knees are still destroyed, of course, but I can bear weight on them again! For the first time in five years, I walk without a cane. I am still sick from the mystery polyneuropathies, but jeez...I feel like I am experiencing something miraculous. If you are interested, The CBD Project has a lot of information online. Again, CBD's won't get you high, but the different cannibinoids therein are turning out to have some great medicinal effects and are being researched like crazy now. For good reason. I hope this helps you and others, and you can obtain as much relief as I have.
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@grokking thank you so much for this information. I am definitely going to look into this. I don't know what CBD stands for. Would you mind letting me know, and if you have a website or link you would recommend??? I am really happy for you to hear this has helped you and thank you for sharing.
Hi @olegraymare! Please look up The CBD Project. Lots of serious information. There is nothing to fear in CBDs (cannibidiol). They comprise a host of cannabis constituents that are being found to have an important place in health care. I'm not a random druggie--I am a 65-year-old woman with a very mysterious autoimmune neurodegenerative disease,severe inflammatory arthritis, and issues with weight loss (docs seem unconcerned), no appetite, new sleep disorders, fatigue, deppression, etc.. A friend gave me my first trial with cannibinoids for dense refractory insomnia, just an experiment, and that did it for me. My Kaiser doc mentioned that they had some kind of informational relationship with one of our fancier dispensaries here too. Both my doc and shrink are pretty pro- using cannabis for that which they haven't been able to help except temporarily with bad drugs. CBDs appear safe in all I've read. Just plant-derived without corporate adulteration (so far!). They contain no THC, which is the component of cannabis that is the euphoric--what gets you high. Personally I find the oil/thick oil concentrates the most effective, though you can purchase CBD and/or THC-containing products like pills, vape pens, edibles of all sorts, or just smoke the pot (there are CBD-only grades, for light drowsiness.) I am still using the same type of concentrate tried initially because it worked! It is strong, I guess, and in fact has lots of THC, but for some odd reason I don't feel high. Oh, CBDs are potentiated by even a small amount of THC, so it's good to get those (concentrates) that have some THC, which is expressed as a ratio, e.g., 28:1 is highest CBD, not necessarily most effective. Then you can get 8:1 (8 parts CBD to 1 of THC) which is still so low in THC that you won't likely notice it at all. Experiment with CBD edibles first, even dosed capsules (those did not help much), see if they are tolerable, work your way "up" if too much. Know that edibles take a couple hours to start to take effect. I'm in bed when I take mine since I'm so often recumbent. Best of luck. Have no fear. Know you are giving your body and brain good medicine. Some might say it is one of the millions of plant God put here for our use...
Sorry, jmmb. I was answering you, but addressed to another. (@olegraymare). Oops. Sorry.
Thank you for all this helpful info. on CBD. I can go down the street and check out their products.
Hi again. I looked at that store online. All CBD. I wonder if any products have a dab of THC for the boost it provides. Is that the only dispensary where you live? I'm sure they'll help you out, in any case. Best wishes...
Thank you. Medical Marijuana is legal in AZ with two dr. consents and all, but I am sure I could get it. I am just concerned with all my tests right now. Plus I was a teacher and afraid if I go back and all, but at this rate it unfortunately doesn't look like I am going back to work anytime soon....I will let you know if I try it!!
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Yes, I have done some research into CBD. We have a local shop here that sells to many of those suffering from PTSD. The product they sell is produced by http://www.greenroadsworld.com. They have a lot of information about cannabinoids on their website. So far, I'm too chicken to use it and want to get more information under my belt.