← Return to Rare Cancer: Gynecologic Extramammary Paget's Disease

Discussion

Rare Cancer: Gynecologic Extramammary Paget's Disease

Gynecologic Cancers | Last Active: Oct 24 10:43am | Replies (76)
Comment receiving replies
@joyceinil

I was just diagnosed with extramammary Paget's Disease. Have not talked to my doc yet. Just know what I read online. Pretty scary. I am 84 years old and not in the best of health. Anyone else have this awful rare disease? What was your treatment?

Jump to this post

Replies to "I was just diagnosed with extramammary Paget's Disease. Have not talked to my doc yet. Just..."
ameliae | @ameliae | May 26 7:06am

Yes. Everyone is different. I am in a minority - but at 77 have decided against surgery - at least for now. It also depends if it is invasive or not now. You will find lots of support here and in another private group that has folks from around the world. myEMPD. The exact link is in the comments here somehere. I'm sorry not to be good at finding things.

VIEW AND REPLY