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Detecting cancer in women with dense breasts: MRI?

Breast Cancer | Last Active: Jun 5 7:54am | Replies (168)

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@einnoc

I have dense breasts and calcification in both. I had a lumpectomy on 1/27/2022 (11 mm, 95% estrogen positive). I cannot, so far, get anyone to okay anything but a mammogram. How do you get an MRI if your doctor won't order it. My onco score was 29, which means that I have a 36% chance of a recurrence if I don't take the A.I. pills, which I cannot tolerate. (If I did take them---or could---it would decline to 18%). I have asked for the Signaterra test and was told I was not bad enough for that and that it is not universally accepted as accurate by physicians. How does one "get" an MRI if their doctor won't order it? My Illinois doctor would not order ANYTHING. I did not get an oncotype after my surgery and when my surgeon suggested a ki67, he would not order that, either. I now have an Iowa City doctor who barely looks at me and a Texas doctor who just ordered a CT scan with contrast because my live enzymes have gone way high. It is so frustrating not to be able to have better supervision of whether there is (possibly) a recurrence. It took me 17 months to get the oncotype, for Pete's sake, and that is supposed to be used to plan your treatment. My Illinois oncologist (who is no longer my Dr.) simply dismissed my December of 2021 request for one, saying, "You don't need one." When it came back as 29 because my Texas doctor (we winter there) did order it from the saved tumor, he told me that, had I been his patient at the outset, I would have had 3 bouts of chemo. As it is, the only thing that is hopefully keeping me from having a recurrence are the 33 radiation sessions I voluntarily underwent, even after Iowa City told me that, had I been their patient, they would not have radiated me at all. When I asked "Why not?" (I was scheduled to start the treatments in 3 days) he said, "Because you're a woman in your 70s." Now that I have learned, the hard way, that I cannot tolerate the A.I. drugs, I'm glad I went ahead and had the radiation and now I feel it is about the only thing protecting me.

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Replies to "I have dense breasts and calcification in both. I had a lumpectomy on 1/27/2022 (11 mm,..."

Are you on traditional Medicare or Medicare Advantage?

That doctor was rude and stupid. I'm sorry you went through that.