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@rarecandy02

Dana, thanks so much. Our situation is different as I’m not married to the person I’m going to be a caregiver for and I’m a single, working mom of a teenaged son. I actually used to work at Mayo! I can be the primary caregiver and plan to take leave from work to care for him and have him move in with us for as long as he needs but I am not sure that 24/7/365 is feasible or that a 12 week leave without pay is realistic. I can probably do at least 8, though! He does have some other reliable friends who are also willing to take part and my son and I have some good local support too.

I was feeling a little overwhelmed at first but once I learned that I can take an unpaid leave from work, the stress level went way down. I really do want to be there and I really want him to be able to get a heart.

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Replies to "Dana, thanks so much. Our situation is different as I’m not married to the person I’m..."

rare candy, Well he's lucky to have you. It will be a bit busy at first, but it won't take to long and He'll be able to do many things without much help. Even just a few weeks after mine, my wife was able to leave and do things for herself. She always loved walking for a hour or 2 each day. So with your other helpers that he could call when needed maybe a schedule will allow you to return to work Im thinking by your 8 week timeframe or maybe even less. We left the Hospital about 2 weeks after transplant and spent 2 weeks in a hotel nearby. Then went home as the appointments slowed down a bit. I live in Florence about 70 miles from Mayo and if we had to be near the hospital multiple days would get a hotel room. But once home it was really the lifting restriction mostly. I could only lift 10 pounds for the first 6 weeks. So it was mainly things that required lifting and car rides because until off of pain killers which ended at 6 weeks also. so after that i could even drive myself. But my wife was at all my appointments most of the first year. so that will be the hard part Im suspecting. Is your work close by? if you needed maybe after the 6 week point how easy will it be to be available for appointments. The biggest event was the biopsies. being under anesthesia required a driver every time and up to the about 6 month point they are often. Life for me is so independent now it hard to remember how much help I needed and for how long.