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Autoimmune Diseases and Fatigue

Autoimmune Diseases | Last Active: Oct 4, 2023 | Replies (544)

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@jmmb

Hi @jeriliz and @johnbishop. I do take Modafinil. It is my "speed". I say that because so far that is the only thing that gives me any sort of help for my fatigue. I take 2 200mg tablets every morning. I believe that is the max dose, or at least for insurance. It is very expensive. I am on Medicare and since I am in Arizona, I can't get a supplemental insurance since I am on social security disability. The stupidest thing I ever heard but it is what it is. You can find coupons for it sometimes on the internet.
Anyway, I was put on that because I have Chronic Fatigue Syndrome. Then I had a surgery in 2014 where my celiac and sma arteries were compressed from my diaphragm. I have later come to learn that it is called MALS and a very rare disease. This also adds to the fatigue and I have a number of other medical issues. I still nap everyday. Some days are better than others, and I can tell if I over do it. I could be down for a week. I can tell though a difference if I don't take it. For example, after another surgery, I didn't take the Modafinil since I was resting from getting stents in the arteries. When it was time to start moving around I took one pill and could feel a little more energy but then that wore off, then went back to the 2 pills. I am still looking for other things to help with my fatigue. I read savilla, I think that is how it is spelled, is good for fibromyalgia and fatigue. I will probably be adding that after my surgeon visit next week. I hope this helps you. I know every one is different. I have a bad stomach and I can tolerate this pill with no issues also.
Let me know if you have any other questions. Good luck to you.

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Replies to "Hi @jeriliz and @johnbishop. I do take Modafinil. It is my "speed". I say that because..."

I’m very sorry to hear what your going through. I will punch up this medication and take a look. I really do feel for you as my fatigue is like a ships anchor always tugging. The funny thing is that, well not funny but you know what I mean, my usual bed time is from 11-1:00am, and the problem is I sleep only until 5-6 due to my problem listed below, Then I get 2-4 more hours in a chair or try to as I wake up about 10 times during that period. I’m also fully disabled and just got new insurance which I’m very excited about Harvard Pilgrim which I’ve been told its one of the better HMO’s with RX provided. I was a very healthy individual, actually a cop-firefighter EMT and had my own business of public safety communications up until 2010 when I had a compressed L3-L5. Doctor talked me into a new procedure and 8 years later that procedure will be the cause of my death I feel. They Use BMP-2 recumbent lab made bone regenerator which I feel has gotten into my blood and is causes a list of issues one being MP, and all the hasty affects. Due to my damaged small intestine and the inability to absorbed needed nutrients I do need something just to keep the battery from bottoming out. They took more blood Friday so to give a marker before trying any new treatment so I will let you know what they have come up with and if it helps. You know when they give medication know there’s about a mile of issues that come with it which sometimes is worse than the issue. Thank you for your time, Scott Sent from Mail for Windows 10