← Return to PMR flare -Shoulder and neck pain..and headaches

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@tuckerp

You are one of the lucky ones if just on since February. Many get caught for years. I know we are all trying to make sense of what might work and its obviously not a good idea to take advice from a non medical person. Each person can have so many other things going on. Some are convinced your diet will cure it. It cant hurt but it doesnt take into account each individual. Your GP might be right but I considered myself lucky that I got off in 6 months. I was able to go from 10 to 7.5 then to 5 and tried twice to go from 5 and couldnt. I just kept trying. You can get off as long as the PMR is stable. They should be checking your markers. Sed rate - CRP. I do not understand Methotrexate. That is a nasty drug that can cause cancer in your lump nodes. Used for inflammation in RA. Completely tanks your immune system. I dont get it. Seems they would try a newer drug like Actemra or Kevzara prior to that. Maybe cost of the drugs? PMR is a nasty condition made worse because the prednisone is the drug of choice. But PMR does not seem to be something you cant get past. Not like RA or cancer. Good Luck. I would ask more questions. Keep trying it does get better.

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Replies to "You are one of the lucky ones if just on since February. Many get caught for..."

Right now, I am on all three drugs. Prednisone down to 8 mg. Methotrexate and Kevzara. First thing to go will be the pred, then methotrexate. Kevzara may be with me for awhile. The pain in my shoulders and neck is new. I’ve had pmr for 18 months and it has mostly been in my thighs and hips. This intense pain and stiffness in neck has triggered a round of migraines. Using moist heat has backed everything off and I am feeling much better. One thing for sure. While everybody is different, the Kevzara is making a difference for me. I forgot to take my dose last week because of family emergency. And the flare I had I think was a direct result of not having that and tapering down to 8 mg as most of you know under 10 is the danger zone. For me the drop from 9 to 8 has been very difficult.