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PMR flare -Shoulder and neck pain..and headaches
Polymyalgia Rheumatica (PMR) | Last Active: Jun 14 3:53pm | Replies (25)Comment receiving replies
I am titrating down have been on prednisone since February started at 15 then 12.5 and for the last two weeks 10 but am suffering bad brain fog a very muzzy headache and feeling nauseated and have little appetite. My GP said it would be due to the reduction. She also said that after 10 mg you titrate down 1mg per month do you ever get off this drug and my rheumatologist wants me to commence methotrexate by injection too I am very confused
Replies to "I am titrating down have been on prednisone since February started at 15 then 12.5 and..."
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You are one of the lucky ones if just on since February. Many get caught for years. I know we are all trying to make sense of what might work and its obviously not a good idea to take advice from a non medical person. Each person can have so many other things going on. Some are convinced your diet will cure it. It cant hurt but it doesnt take into account each individual. Your GP might be right but I considered myself lucky that I got off in 6 months. I was able to go from 10 to 7.5 then to 5 and tried twice to go from 5 and couldnt. I just kept trying. You can get off as long as the PMR is stable. They should be checking your markers. Sed rate - CRP. I do not understand Methotrexate. That is a nasty drug that can cause cancer in your lump nodes. Used for inflammation in RA. Completely tanks your immune system. I dont get it. Seems they would try a newer drug like Actemra or Kevzara prior to that. Maybe cost of the drugs? PMR is a nasty condition made worse because the prednisone is the drug of choice. But PMR does not seem to be something you cant get past. Not like RA or cancer. Good Luck. I would ask more questions. Keep trying it does get better.