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Neuroendocrine Carcinoma with Liver Metastasis

Neuroendocrine Tumors (NETs) | Last Active: May 28 9:40am | Replies (29)
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@bnjncrew

Hello. My thoughts are with you. My husband has had 3 of 4 lutathera treatments (PRRT) his scans showed reduction after the first two treatments. His last treatment is in June but want you to know he is doing the best that I have seen in the two years of this process. His bloodwork is positive and his energy level is very good. His is also stage 4, but, insulinoma pancreatic origin, NET’s that metastasized to his liver. We are feeling optimistic. My best to you.

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Replies to "Hello. My thoughts are with you. My husband has had 3 of 4 lutathera treatments (PRRT)..."
qbandoc1 | @qbandoc1 | May 26 11:51am

After 2 yrs of intermittent diarrhea, I was diagnosed with NET around Dec 1. It probably started in the appendix and spread to liver. I received 8 cycles of oxaliplatin, 5 FU and Imfinzy every 2 weeks. After 4 cycles I was clear by PET, thank goodness. Now i am on Imfinxy,once a month and Xeloda, an oral 5FU. I hope to go back to work in a week on a limited schedule. I don’t know how many people are getting this regimen, am curious to know.

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