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Where to go for comprehensive evaluation?

Polymyalgia Rheumatica (PMR) | Last Active: May 25 5:36pm | Replies (5)
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@lg5309

Yes. I can’t seem to taper down on the predisone. The lowest I can get to is 10mg. Mayo in Jacksonville told me that PMR is not something they treat or specialize is. I do live in Florida. I do see vasculitis centers in the United States. Just wanting to know who has the strongest department.

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Replies to "Yes. I can’t seem to taper down on the predisone. The lowest I can get to..."
John, Volunteer Mentor | @johnbishop | May 25 10:48am

You are not alone with having trouble tapering off of prednisone. It can be difficult for a lot of folks with PMR. There are many discussions on tapering down on prednisone that might be helpful to scan through - https://connect.mayoclinic.org/search/discussions/?search=Tapering%20off%20of%20Prednisone.

You might find the following tapering plan worth giving a try - Dead slow and nearly stop reduction plan: https://healthunlocked.com/pmrgcauk/posts/131189593/dead-slow-and-nearly-stop-reduction-plan

How long have you been on the prednisone, when were you first diagnosed with PMR?

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