Meningioma: Anyone else? I'm frightened

Whoops-was reading our exchange and my husband corrected me. My meningioma was 2.7 centimeters, not millimeters. My neurosurgeon also specializes in meningiomas. I am glad to hear you will be taking care of this at Duke University. You're in good hands.

Drs. discovered I had a meningioma in 2018 and I was sent to a surgeon who did Gamma Ray Surgery to keep it from growing. I had to have an MRI every year for a few years and now it's every 2 years. The Surgery was like having an MRI and I have had no problems since then. Once it hits a certain size they can't do Gamma surgery. I would ask your doc if he or she could or would suggest Gamma. From my research, I know they do grow slowly but...

I was diagnosed with a meningioma in 2011 and have only had it monitored in all these years. Met with the neurologist after another brain scan to find it’s grown a lot. It’s now 24mm & is of the fossa posterior. I’ve been referred to neurosurgeons now but for radiation therapy. If anyone has had such therapy could you kindly tell me the process. Thanks & good luck

I had Gamma Ray surgery in 2018 and have had no problems since. I do have an MRI every 2 years to make sure it hasn't grown. The surgery is like an MRI with no pain.
Good luck

Hi I had one removed two years ago April 18th. It was successful with some minor defects. What size is your? Where is it located? Do you currently have symptoms from it? How did they find it? Do you have a neurologist? Is it going to be removed? Mine was rather large & was causing lots of major problems & disrupting my daily quality of life when I wasn’t sleeping 20/22 hours a day. My surgery was successful with a few permanent defects.

That’s reassuring , thank you. Is it called Gamma Knife? Did it reduce the size of your tumour? Thank you again for your reply.

Yes, it's called Gamma Knife surgery. I don't remember if it reduced the size of the tumor but it stopped it from growing. I have had no issues with it. If you and your doctor decide to have it done, I can walk you through it. I was very nervous and one of the gals in this group- Jill- did a step by step of the procedure. She helped me out a lot.
Good luck

Is Gamma Knife the one where they have to mold a mask to your face?

i have had a meningoma for 5-6 years that has been monitored by my neuro-oprhamologist. On May 7, 2024, i had another scan and was told by my neuro-opthamologist that the meningoma had enlarged. He immediately referred me to an oncology neuro-surgeon he highly trusts for an evaluation. Presumably, the two will develop a treatment plan. I would think among the first things the neurosurgeon will want to do is get a biopsy

No, the one I had wasn't a mold. They put a helmet on me and gave me lidocaine and then screwed it on. The lidocaine stung but I only felt pressure with the screws. It really wasn't bad or painful.