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"Evolution" of Seronegative RA into PMR
Polymyalgia Rheumatica (PMR) | Last Active: May 30 8:30pm | Replies (31)Comment receiving replies
Reactive arthritis derives its name from a "reaction to an infection."
https://www.mayoclinic.org/diseases-conditions/reactive-arthritis/symptoms-causes/syc-20354838
It used to be certain specific infections caused it. More and more I'm reading that almost any infection can cause it. I had a genetic predisposition to have this type of arthritis. When I read how many people develop PMR after a Covid infection, I wonder if they actually have reactive arthritis instead of PMR.
My reactive arthritis had recurring flares that never went away. High dose Prednisone followed by a fast taper resulted in remission each time. I did this successfully more than 30 times. Unlike PMR, when I could never taper off Prednisone until a biologic called Actemra (tocilizumab) was tried.
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Jesus God! At 79 I know I’m going to die before I see her improve, but your heroic story is one I WON’T share with her…yet. I think I’d better talk to her husband (who’s being a rock, even if stunned like us all), and see if we can get her a shrink. You must be the strongest person alive! Did you get therapy, find this group really helpful, or just gut it out? I need to drop back I guess, and try to get advice about how to be a non-interfering support…maybe there’s a book y’all could recommend? For sure, there must be tricks of the trade for your relatives/friends/caretakers? I guess just listen and not try to become a research maniac, doctor second-guesser, (control mom). Thank you so much!