@ogmom I'm sorry to hear what you have been through - people sometimes don't realize how difficult and even life-threatening asthma can be until it happens to them or someone they love.
We have a great support community here, so someone may have an exact suggestion for you. I know you have seen many doctors, but have you been treated in a multi-disciplinary practice with specialists in Intractable Asthma? Mayo Clinics (http://mayocl.in/1mtmR63 ) have Asthma programs in all 3 of their locations, Rochester, MN, Jacksonville, FL and Phoenix, AZ. Other specialty centers include Cleveland Clinic, Massachusetts General/Brigham, Duke University, Ohio State U Wexner Medical Center and U of Texas at Houston. I'm sure there are others as well.
Have you considered a referral to one of these?
Sue