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DCIS first follow up since surgery in September.

Breast Cancer | Last Active: Jun 4 1:27pm | Replies (37)

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@alisa1

I was diagnosed with invasive carcinoma of no special type (ductal) grade 3, Stage I triple negative breast cancer. In learning more about DCIS, I see that every surgeon and oncologist have various medical recommendations and actions taken towards surgery and treatment.

Because I didn't want to have the uncertainty, as you have stated, I opted for having a double mastectomy. It was the best decision I could have made. The fat necrosis is not an issue but a side effect from the surgery.
My oncologist said it will go away but do not stop either exercise or physical therapy for strengthening (and yes, it hurts but movement is good). Radiation was not required. However, chemo was recommended (4 infusion treatments) however, due to the size and margins, I opted out of chemo. Because I did not have to have radiation, I was able to complete reconstructive breast surgery without incident.

Subsequently, I think the uncertainty will persist because the thought of the return elsewhere is probably in the back part of my mind. Nevertheless, I will not let this impact my quality of life. I refuse to!

Not sure but I would speak with the professionals after your test and think about having a mastectomy if possible. I have heard of persons who receive radiation doing reconstruction, but it is stated that the results may not be favorable, meaning shape, size, and appearance may be irregular.

Best to you in your journey!

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Replies to "I was diagnosed with invasive carcinoma of no special type (ductal) grade 3, Stage I triple..."

Thank you for sharing your story. We all have to hear what the doctors say, research on our own, and come up with what we feel is best.

I did speak with my oncologist and the surgeon both today. The surgeon gave me more information on the calcifications that helped clear up some of my concerns.

Goad you are doing ok.