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Budesonide nabulizing

MAC & Bronchiectasis | Last Active: May 27 7:45am | Replies (8)

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@gigiv

I was diagnosed with aspergillus, pseudomonas and MAC and BE in 2022. They put me on antifungal (clotrimazole I believe) for 3 months. The first month of treatment was tough, they prescribed nebulizing budesonide to help me. It did, the last 2 months of antifungal caused me no issue whatsoever and I felt super great, O2 at 98, feeling completely fine, lots of energy. My pneumologist was very impressed, he told me to stay on budesonide, and that we would not treat pseudomonas and MAC because I was doing extremely well. Fast forward to dec 2023: I had a major event of hemoptisis, it is not clear what triggered it. they said maybe the budesonide, maybe the pseudomonas, may be the MAC. I do believe Budesonide helped me some last year, but now i am off of it and doing great. while on budesonide, I did not get a thrush.

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Thank you for sharing. Every new med makes me anxious. I want to feel better and I do taking it but still I have concerns. NJH clearly says no inhaled steroids if there is no asthma- I have mild asthma but of course my lungs are damaged so maybe this is why Budesonide helps