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Anyone have multiple pulmonary embolisms and autoimmune conditions?
Polymyalgia Rheumatica (PMR) | Last Active: May 27 6:14pm | Replies (21)Comment receiving replies
How long have you been on blood thinners? I started on them a month ago after suddenly getting a big leg DVT clot, which I guess was caused by having to raise the dose of prednisone after a flare. Your recurrent lung clots would be a big worry for you. It just seems to be one thing after another doesn't it. Hang in there and keep holding onto hope that better days are ahead. It's all we can do for now.
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I was placed on blood thinners in Feb. 2024. Diagnosed with GCA in May 2023.
In February, they found three pulmonary embolisms and placed me on Eliquis. In March, they found a tiny non-inclusive one while on Eliquis placed me on Lovenox shots and I started hemorrhaging. They put me in the hospital again got the bleeding under control switched me to Xarelto and two weeks ago found another blood clot so I have had two blood clots while on blood thinners it is like walking on, thin ice. They optimize dosage I have had venogram there are no DVTs I have had abdominal scans. There is no internal bleeding. I have had a breast biopsy. They checked the colon there is no place else to check Oregon wise. There is no blood cancers I went to a specialist who was supposed to be the all to end all of the dark horses and basically he said you have idiot pulmonary embolism try this new increase and good luck. Yeah that didn’t go over well suicide from giant cell arthritis I now M frantic from these blood clots. I’m down to one milligram of prednisone Turma shots weekly. I have been placed on a no-fly list so I am stuck in Texas just where I always wanted to be.