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@ceciliamarypatriciafrancis

I'm posting for the first time in a couple of years about this question of follow-up treatment after Evenity. I think I was one of the first people on this site to have completed the 12 month course of Evenity injections. My treatment was considered very successful with scores decreasing from -3.6 and -3.2 to -2.8 and -2.6. I'm 85 years old and had been treated for osteoporosis since my first bone density test when I was 63....mostly with Actonel and then when there was no improvement, with one Prolia injection. Within days of the Prolia injection my sense of taste was weird. I could taste things, but there was some sort of overlay that affected it (coffee in particular tasted terrible), and it took 4 years to return to normal. I no longer was willing to continue with Prolia after that first injection. At this point, my regular provider said that since meds weren't helping after 18 years, it was up to me to decide to continue with Actonel or not. I discontinued it and then a couple of years later, I was counseled to try Evenity, a new treatment on the market. My ENT was pleased with the results, significant improvement: -2.8 and -2.6. She recommended that I follow up with a yearly infusion of Reclast. I didn't want to do that since the 6-month Prolia injection affected me adversely and to me, infusion sounds like chemo, so I went back on Actonel instead. Now, two years later, my latest DEXA shows a decrease and she wants me to do the Reclast.
Some other facts: I had undiagnosed asymptomatic celiac disease only discovered during my first colonoscopy at age 63. This was most likely the cause of my osteoporosis. I haven't had any fractures in years, despite being klutzy.

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Replies to "I'm posting for the first time in a couple of years about this question of follow-up..."

@celiamarypatriciafrancis
I am 77...doctors over the years have wanted me to take bone medicine. Years ago...one week on fosamax
And I could hardly get out of bed! That was the end of that!
Now, at 77...my Dexa number at my femoral neck
is -3.5. Yes, now I am willing to address it...my doctor has suggested evenity...2 injections every 28 days for 1 year...followed by Reclast to maintain gains in bone. I am not a drug person...
I wish you well on your journey!

ceciliamarypatriciafrancis You could do another round of Evenity and try to grow some more bone before trying something like Reclast to hold on to the bone you have.

I am almost done with Evenity 2 more months to go than I will follow up with Reclast . My spine T score when I took the DEXA was -4.6 .