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"Evolution" of Seronegative RA into PMR

Polymyalgia Rheumatica (PMR) | Last Active: May 30 8:30pm | Replies (31)
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@scpartain

I'm very sorry your daughter has been going through all this. My father suffered from rheumatoid arthritis years before drugs like methotrexate were available and I know first hand the toll this disease takes. I'm hopeful for all of you that she's now getting the help she needs. Here's a link to an article about methotrexate that may interest you https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7047041/.

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Replies to "I'm very sorry your daughter has been going through all this. My father suffered from rheumatoid..."
ferret911 | @ferret911 | May 24 12:42pm

We really appreciate your responding. The article gives us the data showing the side effects really contribute to quitting using it. I hope our new rheumatologist has a bunch of other meds to control the side effects. More pills for the pills…as a 79 year old mom, I hope I live long enough to see her turn a corner. Much appreciation to you…

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pb50 | @pb50 | May 24 3:16pm

@ferret911
I was on methotrexate for years. Just make sure someone is doing quarterly blood draws to check liver enzymes - ALT /AST- and prescribe folic acid to help mitigate those MTX side effects.

So this isnt reactive arthritis? Im ccing @dadcue who has a history of both reactive arthritis and PMR. I have RA that began as sero negative.
Both he and I - him much more than I - have first hand knowledge about weaning off steroids. And that has to be the goal, because they destroy bones and are addictive.
It sounds as if she is in capable hands now and i promise there is an end state that is more good than bad. It just will take some maneuvering to get there. Happy to answer any questions about life with RA.

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