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Statins - side-effects, PMR, Giant Cell Arteritis

Polymyalgia Rheumatica (PMR) | Last Active: May 26 11:42am | Replies (22)
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@dadcue

I didn't ever have osteoporosis but I do have excess bone formation in places where bone doesn't belong. My lumbar T-Score was +4 which isn't good either. I had my knees replaced and developed heterotopic ossification.

Heterotopic ossification (HO) is the presence of bone in soft tissue where bone normally does not exist. It is also called an aberrant healing process that was completely unexpected but possibly caused by excess inflammation. I seem to have too much bone in my lumbar spine but the surgeon says it isn't "good bone."

I try not to blame Prednisone for everything but it dysregulated many things.

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Replies to "I didn't ever have osteoporosis but I do have excess bone formation in places where bone..."
isabelle7 | @isabelle7 | May 23 11:13pm

@dadcue
Have you researched to see if prednisone could be the cause? It’s crazy the way our bodies work.

Sometimes there is no other option than to turn to drugs. Unfortunately some drugs can have some pretty nasty side-effects. And we never know how our bodies will tolerate them.

From everything I’ve read in prednisone. Taper as quickly as is safe. My husband is on Actemra to help taper more quickly and in hopes it will reduce the chances of a flare.

I hope the best for you. It sounds like too much bone can be as bad as not enough.

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