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Solitary Fibrous Tumor: Anyone have experience with this?

Sarcoma | Last Active: Aug 15, 2024 | Replies (15)

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Profile picture for Colleen Young, Connect Director @colleenyoung

@debgayle1, what a remarkable story! I can only imagine the roller coaster of emotions you've been riding for the past 2 years. It sounds like no one was expecting surgery to be a possibility.

In terms of dealing with bowels issues, four months since surgery is not that long (even though I'm sure it seems like it). Have you been told that things will get better with time?

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Replies to "@debgayle1, what a remarkable story! I can only imagine the roller coaster of emotions you've been..."

Colleen: Thank you for your reply. My surgery was in Feb 2023, fifteen months ago. Actually I've been told this is not abnormal and can last a lifetime. My last hospitalization for partial blockage was just last month. It's called PRD, or Pelvic Radiation Disease.