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← Return to PMR - Decreased prednisone and pain returned
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PMR - Decreased prednisone and pain returned
Polymyalgia Rheumatica (PMR) | Last Active: May 28 1:36pm | Replies (157)Comment receiving replies
I have weaned down to 1 mg 3 times and each time I get pain in my shoulders so I would up the dose again.
I have been reading a lot of comments from others about pain in shoulders while weaning off steroids . I find this to be very mysterious.
I switched to a new Rheumatologist who believes I no longer have PMR and that I probably have not had it for the past 1-2 years and I should get off steroids. I’m down to 2.5 mg and will quickly get off even with mild shoulder pain and hope it resolves itself or I will just live with it. I would love to someday know what the shoulder and upper arm pain is from.
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The lack of production of cortisol. The use of the steroids and the taper actually re-creates the PMR. This is from the NIH . Nat Institue of Health. sorry its in Dr language. "Cortisol dysfunction results in unmodulated inflammation following reactivation of the stress response, which may contribute to a cycle of inflammation, depression, and pain; pain is a stressor that may reactivate a proinflammatory stress response, now unmodulated due to cortisol dysfunction."