First peripheral neuropathy … and now a sepsis infection? $%*&#@
Hello!
I’ve been AWOL from the Neuropathy Forum for a while, for 42 days to be exact, from the morning I was taken to the hospital to be diagnosed with a galloping sepsis infection. A few of you may remember me as the 79-year-old fellow in Colorado who, for the past ten years, has been dealing with idiopathic polyneuropathy.
Why am I returning to the Forum this morning? First, I want to say hello after having been away so long, especially to those with whom I have regularly exchanged posts in the past.
Second, to ask if other PNers have suffered with the double whammy: an ongoing struggle with PN, later exceeded in misery by a nasty sepsis infection. What was the experience like? What was your pre-existing PN? Cause of your sepsis? What were your sepsis symptoms? Have you recovered from your sepsis? How long did it take (if you’ve recovered)? Do you consider your sepsis recovery full, partial, or ongoing?
I look forward to any who have or are experiencing what I’m experiencing.
Cheers!
Ray
Interested in more discussions like this? Go to the Neuropathy Support Group.
Ed - You are so right! Everything on the list must be attainable or on the list because you need to call someone to hire. A few years ago, I took my list of Goals to my PCP. The #1 item was “Get Off Disability and Get Back to Work”. I obviously wanted my income restored to employment level but the general gist was I wanted to be healthy enough and also wanted to contribute to society. My PCP stopped me on #1, squelched it right there, and instead helped me break it down into bite-size, realistic, attainable items. It is a big mental boost to see how what things we can and are achieving!
@bjk3 , @njed , @ray666 My daily routine starts with coffee in bed, checking my electronic gadget stuff, which includes this Mayo Clinic Connect group, watching our mentors and administrators trying to herd us cats. I have my electronic list from yesterday that I change to today’s date, hopefully adding less than I was able to remove as completed the day before. I reorder based on what my body says; today it’s telling me sunshine at the pool. I think it’s important because it’s the only way I’ll be able to keep assessing when the water will be warm enough to get in and do some water exercises 😅😅😅. Have a good day!
Hi, Debbie
I applaud your morning discipline—I really do. It's generally the evening before I get around to checking Connect, which means I very often have a tough time following the path of a day-long conversation.
Ray
Debbie, that's a great topic in itself: What's your No. 1 Goal? It's too easy to say To get better, To feel well, or To get up and about and not spend the day feeling sorry for yourself. Your post got me thinking: What's MY No. Goal for today? I've decided it's To be cheerful. I began the day grumpy. I didn't like being grumpy, Who can change that? Only me. So that's my No. 1 Goal for today: To live wholeheartedly. Not only will the people around me be better off for it; I'll be better off for it, too. 🙂 –Ray
Ray - I read today’s new Spotlight interview and it had a good message of reminders for me.
Good morning, Debbie. 🌞 We sure have had similarities, haven't we? And that "to do" list is my sanity keeper, as well! When I still see things on my list that have been "deferred", shall we say, I am, like you, "not so bothered because of the thankfulness I have for the things that got crossed off." (Your wording of that thought was PERFECT!!) I've always been a list-keeper on some level but now it is "reminders on steroids" 😉. From what I can gather from everyone close to my age (77), this is common, if not normal, and that eases the gut-wrenching fear of accelerated cognitive diminishment.
After the experience of being in rehab for several weeks a couple of years ago, I am now elated to wake up in the morning and actually HAVE a to-do list to work on, rather than sitting around all day unable to do much of anything except the P.T. and O.T. sessions five days a week. Thankfulness abounds, and it is sites like this and people like you that elicit that are the reason!
Blessings, Barb
Good Afternoon, Ray ~~
I got a chuckle out of your post because it so closely mirrors the way I sometimes handle the making of lists. If "to do" thoughts present themselves like a batch of corn popping in my head, I find I write on whatever piece of paper, Post-It, or periodical, etc. that's close - in hopes of not losing those kernels of plans needing deliberate and undivided attention. After some time passes (and hopefully some of the tasks can be crossed off) it's time to "UNITE those Lists" into one or two Master Lists. (Better for me to put one list for kitchen-type duties on the refrig. and one list for the rest on my desk in the living area). Ahhh, feels like I've decluttered already! ✍️😃
Best to you, Ray! Hope you and your partner have a wonderful, classic R & R holiday weekend, and may all who love Connect find refreshment in whatever special way they choose to observe it.
Barb
Debbie, I just re-read this - it's hilarious! Have a great weekend, hopefully poolside as much as possible 😺🕶!
Hi, Barb
I love "corn popping"! What a perfect way to describe the snap, crackle, pop of the day's little reminders. I wonder, though, if I'm the only one who's given up on the idea of lists. I used to be a furious list-maker, lists of all sorts. I gave up making lists a couple of years ago because I only found they depressed me, not the day I made them but the following day when I'd be made to face not the handful of things I had gotten done but the gazillion things I had NOT gotten done. 🙂 I decided I'd take a chance and trust that if an item were really important enough, it would have a way of reminding me without some angry post-a-note dangling from my Mr. Coffee. I do make one exception, however, and that's a grocery list. Without a grocery list, added to day-by-day, I end up drifting about the aisles of the supermarket for hours. Maybe days. (List-less-ly?)
Ray
Oh - my - WORD!!! (Actually YOUR word 🤣😂👏)
My love of lists must come somewhat naturally, having taught two foreign languages in high school. Just imagine, if you care to, all those wondrous lists of conjugations! Regular and irregular! And in every tense! These days, it is an embarrassment how short my memory has become, to say nothing about pauses in speech when I come up short of the word I was looking for in English. Aahhh, the challenges of aging! It is SO much more comforting with a community of friends with whom to identify!!