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What happens when you stop taking anastrozole?

Breast Cancer | Last Active: May 27 3:01pm | Replies (74)

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@carrieclark214

I would think about getting another Oncologist! They are trying different medications for me to see if they can lessen the side effects.

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Replies to "I would think about getting another Oncologist! They are trying different medications for me to see..."

I have had 3 oncologists, to date: one in Illinois (bad); one in Iowa City (vote is out) and one in Texas (good). I quit going to the Illinois one after his complete indifference to my condition became clearer and clearer. The "minions" also made it clear that their only concern was keeping you coming back for that scheduled visit.

When I had my Oct. 3, 2022, first post-operative mammogram I was in a wheelchair, thanks to the side effects of Anastrozole, coupled with my fragile left knee and old age, The symptoms were consistent with a meniscus tear, and I gambled that it would get better if I stayed off it for a period of months (it did). However, I anticipated a bit of "owning up" to the fact that drugs like Anastrozole (any of the A.I. drugs) will inflame arthritic joints and damaged joints. No such luck. The Illinois oncologist simply chalked it up to old age (77 at the time) and left the room with no discussion at all of alternatives to taking a pill or pills (A.I.) that were guaranteed to give me excruciating joint pain. He acted like he could have cared less and didn't want to be bothered.
As I left the last appointment with "the minions" they talked about my fast-declining bone density, as measured on a recent test, and urged me to "make an appointment on your way out." I explained---for the umpteenth time---that I could not make an appointment until I knew when we would be back in town. I told them I would call when we returned to the Illinois Quad Cities. That was in October of 2022.
Imagine my surprise to be sitting on my couch in Austin, Texas in April of 2023 and to receive a phone call telling me that I had an appointment on April 19th. My response was, "No, I don't." It seems that the minions had simply made an appointment for me without any input or "okay" from me. This seriously rankled me, and I quit going to the bad Illinois oncologist from that point on. I had had a second opinion from an oncologist in Iowa City at the University of Iowa Hospitals and Clinics, and I now drive an hour and a half to doctor there, if I need to doctor at all. I prefer to be supervised by my Texas oncologist, who seems on top of things and listens to what I tell him. He recently sent me for a CT scan with contrast when my LFT (liver function test) scores spiked. I now have a Texas driver's license and will vote in Texas in November. I do not ever want to have to have anything to do with the Illinois oncologist whose attitude is seriously narcissistic and godlike. Getting up and walking out while proclaiming, "I won't order that for you. You'll have to get someone else" is pretty bad when the "something" was a test suggested by the attending surgeon, primarily because the oncologist hadn't ordered the oncotype he should have ordered at the beginning of the entire saga. (With the oncotype, I would not have needed the ki67, which also gauges the aggressiveness of the tumor.) I am still in search of tests that will help a breast cancer survivor to know if her disease has recurred. I haven't had much luck having any of these physicians order up MRIs for me, and yet the mammograms are said to miss many instances of cancer if the patient (i.e., me) has a history of dense breast tissue.