← Return to First peripheral neuropathy … and now a sepsis infection? $%*&#@

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@bjk3

Hi, @ray666 !
Gosh, Ray, I just now found this thread of conversation started by your sepsis account. Read through all the comments and replies and want to say hello to all who have become my PN friends and to those with stories I have yet to "connect". I haven't been very active here lately, either, but I've been well.

What a total bummer to be dealing with that weakness in your legs. While I am so very glad to be hearing from you again, I am so sorry about the cause of the lapse in posts. I have been spared this kind of complication but boy, I'm taking note of the many tips and suggestions that I have read here. I have no wisdom to offer on this one, except to say that what I know about the human body is, the harder it has to work to correct something that is disordered, the less energy it has to ward off other attacks which are right around the corner looking for an opportunity. It's so easy, when I get behind on things because of lack of energy or weakness or pain, to want to just push through and try to catch up. But what is NEEDED and not on my "to do" list, is: not allow myself to be deprived of hydration and good sleep. Maybe I need an Rx for that!

Isn't it amazing how much time is required just to take care of our own physical needs in this season of life? I never thought it would be this time consuming! When I was younger I loved to peruse used-book stores and generally would find something that I really wanted to read after my working years when I thought I'd have time on my hands (not being a gardener). Ha! Life has become so much time for self-care (including doctor appointments) and so little time to read. Who knew?

Prayers for your healing and return of more strength than you have now. It's good to be in touch! Blessings, Barb

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Replies to "Hi, @ray666 ! Gosh, Ray, I just now found this thread of conversation started by your..."

Hi, Barb! (@bjk3)

It’s neat to be in touch again. I’m the true absentee. Sepsis benched me. I find it hard to believe that it was 52 days ago today when I was taken by ambulance to the hospital. I had been a real know-nothing when it comes to sepsis; I thought I’d be back home and posting on Connect in, oh, three or four days at most. Fool that I was!

“But what is NEEDED [is] … not allow myself to be deprived of hydration and good sleep.”

Amen to that, Barb! In fact, that’s worth saying three times over: Amen! Amen! Amen! And right alongside hydration, you can put PROTEIN. What I heard over and over, both in the hospital and in rehab, was my broad-spectrum IV antibiotics would take care of battling the sepsis; my principal job in healing was twofold: (1) get myself rehydrated and (2) load up on protein. I did both with a passion; in fact, I’m sipping some sort of delicious rehydration concoction of my partner’s devising as I type this.

“Isn't it amazing how much time is required just to take care of our own physical needs in this season of life?”

So true! I smile to think that I’m actually looking forward to this sepsis business being over and done with so that I’m able to devote a little spare time to dwelling on my idiopathic PN. 🙂

Keep in touch, Barb! And stay well.

Cheers!
Ray (@666)

@bjk3 - You and I have shared so many similarities in our journeys and you’ve reminded me of the realities we face. I can’t help but to keep a To-Do list (formal) or I’ll forget things! I often think of what @njed coached - Focus on what you CAN do, not CAN’T do. So when I see what things are still on my “list”, I am not so bothered because of the thankfulness I have for the things that got crossed off of it. As you said, budgeting our energy for long term survival is key, so we do this one step at a time! I hope you’re moving along well!