← Return to Lobular Breast Cancer: Let's share and support each other

Discussion

Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: May 27 11:09am | Replies (370)

Comment receiving replies
@semurrey

My onco fought me on MRI at Dana Farber even though lobular and very dense breasts still at 58 yrs old! She finally put in order and my insurance did cover! Congress has The Find it Early Act but no action so far but this will make ins companies cover breast MRI for those at higher risk! I’ve also read that while the contrast has been found to stay in some areas of body no ill effects have been proven. Early detection is all we have!

Jump to this post


Replies to "My onco fought me on MRI at Dana Farber even though lobular and very dense breasts..."

I read fine print on the gadilinium(sp) dye used with the mri of breast and it says not to use more than 4 times in life time. Unfortunately, I have used it in other studies as well in other parts of my body. I am requesting the flush IV after my breast mri in July and requesting Medicare to pay. Has anyone out there had Flush IV after mri with dye procedure? Thanks

If you read the dye paper that you sign read when you have dye with mri it says you should only have the dye 4 times in life. Apparently it goes in brain and other places in body. Drinking water and Gatorade after exam only flushes so far. I am requesting a IV flush after mri. I just want to connect with people that have had the IV flush. Who out therehas? Thanks

I wonder how this will differ from or add to the recommendations just published here: (https://www.uspreventiveservicestaskforce.org/uspstf/recommendation/breast-cancer-screening#bcei-recommendation-title-area). These recommendations seem to decrease the frequency of mammogram and discourage use of MRI. Am I reading that wrong? It's a losing battle to get anything more than the lousy mammo that apparently missed my cancer for probably a few years, though religiously obtained them. No source of consolation for me 🙁 .

When it comes to the Find It Early Act, I would love to know what qualifies a person for additional screening such as MRI. Seems to me there will be all sorts of caveats one must meet and those, like me, with early stage ILC and smallish tumor will be SOL. Not optimistic any of this will help those with true early stage.