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Rare Cancer: Gynecologic Extramammary Paget's Disease
Gynecologic Cancers | Last Active: Oct 24 10:43am | Replies (76)Comment receiving replies
Hello, Naomi: I had several spots all around the vulva area the last three years since the discovery, so my oncologist said surgery is not an option right now. Yes the treatment seems to keep things in check, but I am wondering about why the "manifestations" are coming so often. She has told me several times when I start to worry that, as long as I treat the new spots, I should be fine. Since EMPD can be found in the breast, I asked her if my disease could be spreading to the breast and she did not think so, but then again there seems to be not enough evidence or research.
Replies to "Hello, Naomi: I had several spots all around the vulva area the last three years since..."
I am very new here and just learning the ropes. Just diagnosed. I thought surgery was the preferred treatment. May I ask what "treatment" is keeping things in check for you? I am 84 and probably can't stand surgery. Wondering if and what any other options are. From what I have read I get the idea that EMPD recurs a lot. Guess that's just the nature of the beast. My dermatologist has been treating me for lichen sclerosis for nearly three years before taking a biopsy last week.
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I see. So you have not had other tests done, mammogram, colonoscopy, Pap smear, to make sure it isn’t lurking anywhere else?
Where are you located again?
Wishing you wellness!