1. < Neuroendocrine Tumors (NETs)

Flushing with NETS lung cancer?

Posted by shosh3700 @shosh3700, Apr 24 11:48pm

My understanding was that flushing only happened with those who have GI NETS. However, I have developed something very weird in the last 8 months or so. Cinnamon, and spices like cinnamon, mild banana peppers and even mild onion cause my face to feel hot and prickly and then that feeling moves all the way down my body to my feet. It is so uncomfortable and lasts hours even over night. When I wake up in the morning, the heat and prickly pain has subsided. Has anyone experience this? Is this how flushing starts with NETs or, is my body just being a "weirdo"?

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ekri | @ekri | May 22 4:31am
In reply to @shosh3700 "Hi Ekri. I've not had the redness in my face, neck or chest. Well, not quite..." + (show)
@shosh3700

Hi Ekri. I've not had the redness in my face, neck or chest. Well, not quite fact, one evening my husband asked me if I had a fever because he said I was flushed. He took my temp, but, no fever. That was only the once and it was just my face. But the heat and prickly sensation goes on for hours . Thankfully, if it happens at night, by the morning it's dissipated. One of my oncologist checked to see if I had a "functioning" nets, and, the blood tests came back as it not being "functioning". I guess time will tell, though, I see the thoracic surgeon next week and hopefully surgery to remove tumour in June. Hoping for a "one and done" .

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Best of luck to you.

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vinnie694 | @vinnie694 | May 22 9:09am

My tumors started in the small intestine and metastasized to the liver before I was diagnosed. I started getting the facial flushing at that time, started with a couple times a day the I was having them over 25 times a day.. they only lasted a few minutes. My Dr. prescribed Lanreotide, injections monthly which did nothing for the flushing ( carcinoid syndrome) injections were switched to ocreotide and I haven’t had any flushing since then.. I know I still have this cancer but at least without the flushing it’s not a constant reminder.. Never lose hope!

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