← Return to Hesitant to begin drug treatment for my osteoporosis

Discussion
Comment receiving replies
@wilkenl

Hi, Ripley,

It was my endocrinologist who recommended I not use any of the drugs that are parathyroid hormone based, e.g., Forteo and Tymlos. "Abaloparatide (Tymlos) is a daily injectable parathyroid hormone..." (from the AAFP website). She didn't want the medication to essentially confuse my parathyroid. I think her thinking is that if the parathyroid senses parathyroid hormone in the body, it will stop doing its work (that's my interpretation of what she said - it's been about six months since we discussed it, so my memory isn't necessarily precise).

Have you discussed using Evenity with your doctor? It might be a better choice in your situation, as the Tymlos website itself says you should talk with your doctor if your calcium levels are too high. If you do go forward with it, make sure you are aware of the side effects associated with the high calcium level, so you can alert your doctor if you experience them.

I spoke with my cardiologist regarding Evenity as there are potential heart/stroke related side effects associated with it (very small risk). My coronary calcium score is very high, which is why we had the concern. It's never a bad idea to make sure that all of your doctors know that you're planning to start one of these drugs.

By the way, my doctor plans for me to start Reclast as soon as I stop Evenity. If I don't, then whatever gains I get from the medication will be lost. Like most folks here, I feel that I am between a rock and a hard place. I've never broken a bone in my life (knock on wood), and I'm still relatively young (66), so having to take such serious medications to protect my back is a tough pill to swallow.

Good luck with your journey!

Jump to this post


Replies to "Hi, Ripley, It was my endocrinologist who recommended I not use any of the drugs that..."

It sounds like you have a very wise Dr. I will discuss the parathyroid issues with my Dr. How long have you been on Evenity and what is your experience with it, such as side effects etc? Is sounds like you will take Evenity for 6 months, is that correct? Regarding Reclast after Evenity, did you and your Dr ever discuss using Fosamax instead of Reclast? I am concerned about the side effects of Reclast and would prefer to take Fosamax since it's a weekly pill vs a yearly injection. I feel like you, with no options that are good. Thank you so much for all the information.