@junebug15 Thanks for sharing your history with carcinoids. Yes, like you, my NET was found "incidentally" during an upper endoscopy for GERD. After the first surgery, I was checked more regularly. Then 10 years after my 2nd surgery, I was told that it would probably not be an issue after so long of a time. Well, I was diagnosed with pancreatic cysts (this too was found when I had a CT scan for diverticulitis) and so I had an upper endoscopy with ultrasound and then the 3rd NET was found. Outside of surgery, there has been no other follow up. I will check with my doctor at University of Michigan later this month and see what he says about the GA68. I would like to introduce you to our other members of the NET group here at Mayo Connect, @amyh2439 @tresjur @joannem @gaylejean @lucci50 @derekd @gulzar @joanney @jenchaney727@dzerfas @lorettanebraska @wordnoid @trouble and @upblueeyes @ahtaylor @heidilynn4 and I encourage everyone to check out the above post of @junebug15. Please welcome our new member. Has anyone else read this book, Zebra Talk? If so, please feel free to comment.
Teresa