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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 18 8:57pm | Replies (402)Comment receiving replies
My story continues. I had my usual Monday visit, and my 30-day bone marrow biopsy came back. The Doctor said I am doing a great job, as all my blood numbers continue to rise nicely, and my marrow shows a 99.9 to 100 grafting of my donor in my bone marrow test. The Dr said keep doing what I am doing. My water intake is working, and he wishes all his patients would follow the suggestions they have outlined. Actually, the protocols for recovery from a transplant. I told him after my " you're killing your kidneys scare" 10 days ago, I want to do all I am asked so the Dr. knows I am doing my part for myself. I have read a few posts on my other site for breast cancer, and one person just diagnosed went down the google rabbit who and only sees doom and gloom. She had a dozen women in different stages of breast cancer give such wonderful messages. Every negative she put out, brought a dozen more women who shared. For me, this is why i also love the May clinic site. With Lori as a mentor and the other patients sharing their stories, I could visualize the road ahead. As best as possible, doing it one day at a time. One test at a time. All I am asked to do is take my meds on time, drink my water, exercise and eat as healthy as possible. I am now 42 days past transplant!
I also an into a lady that was on floor 6 with me in the hospital. I remembered her husband who was with her often. She had a 6 out of 10 match for her transplant. She had her transplant a day after me. What a joy to meet another who is on the same journey at the same time.
I am grateful for MDS and not advancing to leukemia. For the research study i am on that is helping prevent GVHD. A day I got to thank my dr and his staff.
I taught my dr. today about the 1/2 empty cup. The way some people look at life. Rather than to focus on the 1/2 full. He is from Iran.
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Kat, you’re a poster child for how SCT is supposed to go! I enjoy seeing your positive updates. Honestly, attitude can make a huge difference in any journey, right? Looking for the doom and gloom sends a preconceived message that ‘nothing is going to go well…woe is me.’ That’s not productive.
Attitude and effort are two things over which we have control and both can help change the outcome on multiple levels in our life. You are a shining example! Consider where you were in this journey a few months ago with worrying about making the decision to go ahead with the transplant, finding a caregiver and making the logistics of this all work out. Your ‘can do’ attitude and perseverance for a healthy future without cancer propelled you forward until you found a way to make it work! You are a force!
It’s so cool you’ve become friends with another woman who had her transplant the same time! My friend and I are still in contact 5 years later after meeting post transplant. She lives a 1,000 miles from me so we seldom see each other. But occasionally the planets align and our follow up appts coincide at the same time in Rochester. Other than that, we email frequently. It’s really special to have someone to chat with who shared your similar experiences, same doctors/nurses, clinic, etc..
You’re a BMT team’s dream with your following all of their directives. Even though we may not always like them, protocols and guidance are in place for a reason, because they work. So kudos to you for upping that water intake and popping those meds on time. It’s not forever but it sure will help to ensure the positive out of your SCT. Interesting, but since my transplant, I never stopped my daily intake of 64+ oz of water. It became a habit and I feel so much better for it.
Keep up the great work and thanks for brightening my day with your positive message! Sending an air hug!