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MCTD (Mixed Connective Tissue Disease)

Autoimmune Diseases | Last Active: Sep 18 10:07am | Replies (225)

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@jessiek

Becky,
Thank you so much for the reply and encouragement !! I was just diagnosed a week ago but have been suffering with all over severe arthritis pain, headaches and breathing problems for years, along with severe numbness in both hands and arms. its the GI symptoms, along with chest pain and nausea, dizziness that really started to scare me about a year ago. I have had celiac since very young.
You are fortunate to have family that is so supportive, I hope your sisters find good treatments for their autoimmune disorders.
Im glad to hear you are back to your quilting, my grandma used to quilt and I loved it as a child.
For now I have been trying to figure out a manageable work load, I did 3 hrs of welding today, 2 hours of gardening and 2 hours of house work and now I am exhausted so will hit the sack early again. But I have to make a decision on on a big public art commission opportunity, I would never want to pass up a job but I am scared how I will be doing in 8 months when I have to start building it. I will talk to my doctors about it, and on that note, my primary is just O.K. she had to google several of the blood tests I had done at my RA and the new Rhumatologist is so busy, I am luck to get a note to her let alone a response.
This week I am going to try to get back into my Qigong practice, I do a 25 min routine on the computer, it really helps with the nerves and tendons.

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Replies to "Becky, Thank you so much for the reply and encouragement !! I was just diagnosed a..."

@jessiek Have you ever heard of The Spoon Theory? Many people follow the suggestions given in the article. It’s all about managing your energy so you’re not too tired all the time. I usually do several tasks and lie down for a 15 minute break. That’s usually all it takes (I tell myself).
https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/
You did 7 hours of work today which is too much! Maybe you could hire a housekeeper to help!
After reading the Spoon Theory and what other members say, what do you think you could do to lessen or pace your day better?