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3 1/2 years of chronic pain~ Still looking for solutions~please help

Polymyalgia Rheumatica (PMR) | Last Active: May 27, 2024 | Replies (27)
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@nowforyou

Good morning,
Thanks for the excellent information and website links. This certainly gives me a lot to work with. I've been looking up all of the information you included.

This certainly does lead down a different path.

Makes staying on hydrocortisone seem less scary than going on prednisone for sure.

Thank you so much for putting the time into researching and posting those links, it's so helpful for me and I can imagine from any others as well.

Thanks again.
Kate 😊

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Replies to "Good morning, Thanks for the excellent information and website links. This certainly gives me a lot..."
DadCue | @dadcue | May 21, 2024

"The endocrinologist I saw 2 times finally ran some bloodwork and did the "Gold standard" test, ACTH/Cortisol and my cortisol came back extremely low, and even lowered during the test after receiving the IV ACTH. 3.9 and it should be at least 18. The doctor used strong language with me as to how serious this is and that I should go on hydrocortisone daily."

Frankly ... the thought of you coming off hydrocortisone is extremely scary!!! Don't even think about it. A low cortisol level is extremely dangerous!

I had adrenal insufficiency after long term prednisone use to treat PMR. My endocrinologist recommended hydrocortisone but she said I could stay on prednisone if I wished. Fortunately, my adrenals recovered after some time so I didn't need to take prednisone for the rest of my life.

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