Hello Mike,
Thank you so much for all of your information. I'm so glad that you were specific on the medical tests and symptoms. My ESR and said rate were also not elevated, as well as my CRP. Only my CK.

Glad you have been able to find some relief and that you were able to wean off Dex.

Would be nice to be able to go to Mayo for sure. Doesn't look like that's going to happen for me though after three denials. Waiting 11 months to see my neuromuscular department at UNM. Ugh.

Thanks again and good luck to you on your journey!
Kate 😊