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Anyone tried Actemra (Tocilizumab) to treat PMR? FDA approved for GCA

Polymyalgia Rheumatica (PMR) | Last Active: May 21 8:50pm | Replies (107)
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@57rlallen

I’ve been on it for 8 months now. I’m not sure if it’s really helping or not. Also on prednisone but they are weaning me down now. The side effects are terrible but pcp thinks it’s the prednisone not the acterma!! I’m about to give up on all of it…

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Replies to "I’ve been on it for 8 months now. I’m not sure if it’s really helping or..."
John, Volunteer Mentor | @johnbishop | May 21 9:17am

Welcome @57rlallen, Sorry to hear the Actemra along with the prednisone doesn't seem to be helping. You mentioned the side effects are terrible but your PCP thinks it's the prednisone and not the Actemra. Do you mind sharing more about what side effects you are having? Have you seen a rheumatologist?

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