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ESES Treatment and Providers

Epilepsy & Seizures | Last Active: May 22 10:33am | Replies (5)
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@santosha

Hi @wowsmurf
I can not tell you if there are any behavioral issues and cognitive issues with ESES specifically. But for sure, there are those issues in epilepsy. The AEDs can also bring changes in behavior. Keppra is for example well known for the Keppra rage side-effect.
Chris (@santosha)

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Replies to "Hi @wowsmurf I can not tell you if there are any behavioral issues and cognitive issues..."
happyccl8 | @happyccl8 | May 22 10:33am

It can definitely cause behavior and cognitive decline and motor skills as well. It’s devastating. My neuro from ucsf says that all the neuros back at Oakland kaiser are all sitting and wondering what my son would have been like had they caught and treated this as soon as possible. Iq from 85 to 51 is just devastating.

Be aggressive with ESES don’t wait for decline to happen! Start treatment as soon as they see interictal spikes during Nonrem sleep. Get baseline neuro psych testing asap to monitor decline. Dont let the say it’s just autism either. Autism does not regress at 6 years old!

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