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3 1/2 years of chronic pain~ Still looking for solutions~please help

Polymyalgia Rheumatica (PMR) | Last Active: May 27 10:56am | Replies (27)
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@dadcue

Muscle and joint pain is a symptom of adrenal insufficiency. Hydrocortisone is the preferred treatment but Prednisone will also work.

Myositis would account for the symptoms you are describing.

https://my.clevelandclinic.org/health/diseases/24170-myositis

Muscle weakness in the area of the throat is consistent with myositis. An elevated CK level is also consistent.

Myositis and pulmonary complications are part of the clinical picture too

https://pubmed.ncbi.nlm.nih.gov/20692542/
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The following is a good overview of polymyositis and it also compares PMR and polymyositis.

https://www.webmd.com/arthritis/polymyositis

I'm not a doctor but I think you should reconsider steroid treatment. It seems like you will need steroids sooner or later.

"Sometimes, it seems like I cannot possibly hold my head up any more on its own."

You need a thorough evaluation sooner rather than later! Myositis can cause this symptom too but I wouldn't want to speculate about this one.

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Replies to "Muscle and joint pain is a symptom of adrenal insufficiency. Hydrocortisone is the preferred treatment but..."
nowforyou | @nowforyou | May 21 9:30am

Good morning,
Thanks for the excellent information and website links. This certainly gives me a lot to work with. I've been looking up all of the information you included.

This certainly does lead down a different path.

Makes staying on hydrocortisone seem less scary than going on prednisone for sure.

Thank you so much for putting the time into researching and posting those links, it's so helpful for me and I can imagine from any others as well.

Thanks again.
Kate 😊

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