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Making sense of PET scan report

Lung Cancer | Last Active: May 20 3:38pm | Replies (36)
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@lls8000

Hello @jonijean, welcome to Mayo Connect. As patients, it's certainly difficult to know what the best next steps are. I'm glad that you were fortunate to have a benign nodule.
How is your recovery coming along?
Have you been tested for Alpha One Antitrypsin Deficiency disease? The Lung Health, COPD, or MAC groups may have members with this condition.
(https://connect.mayoclinic.org/comment/840980/)

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Replies to "Hello @jonijean, welcome to Mayo Connect. As patients, it's certainly difficult to know what the best..."
jonijean | @jonijean | May 20 2:31pm

Hello. Surprised to hear from someone. I do not have Alpha One Antitrypsin Deficiency. I was actually a Prolastin infusion nurse until just recently. Docs ruled out MAC. What I had was a hamartoma. Actually had a NODIFY LUNG test which said only 12% chance of malignancy and 3 lung docs said it’s cancer (it wasn’t) and did a wedge resection and lymph node removal. Especially when it was unnecessary. But now I know for sure, right?
Thanks for telling me about the links.

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