AH! Keith, thank you and apologies for not replying sooner - easier at my desk on a full keyboard v. phone. And I'm Joan, btw.

Yes, you are the only other person of whom I've read or heard who was diagnosed with lymphedema after having COVID. Have you, through your journey, met others, or heard of others?

You are much further (or is it farther?) along than I in treatment and journey. Thus, I'm grateful for your sharing experiences. My doctors - including the initial ER visits - ignored what I was saying. I'm fat so I'm sure they all thought my leg swelling - tho' I explained I'd never had it pre-COVID - was my body not COVID. (Ah biases toward women of age and size!)

Still no one is investigating the strange skin and pain on my thigh where the severe rash was. The pain is so severe and the location (near my knee and on the back of my thigh) makes it very difficult to walk. or sit. or lie down.

Now fitted w/ lymphedema wraps - for legs and feet tho' the ones for my feet seem to make all things worse so just wearing leg wraps - I see some lessening of the swelling tho' not if I don't wear the wraps for even 6 hours.

Once my appt. this Fri. w/ the post-COVID clinic is over and I see if I'm accepted for .. what? study? .. then I'll ask my other docs to do more blood and other testing. From all I read, I do not have hope.

I will mention your experiences (thank you.) Tho' in my late 70s, I still work (self-employed) and am an non-driver so getting to appts. requires lots of coordination.

This journey is not one I wanted - I expected to live out my "golden" years being if not as active, at least as engaged as before. I'm frustrated and yes, depressed, with all this has put on all of us.

With gratitude,
Joan