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Support Group for Those of Us Living With Mild Dementia

Aging Well | Last Active: Oct 20 7:51pm | Replies (161)
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@janieohrn76

Did anyone get a pet scan? I also in early stage have a voice difficulty problem which caused me to see the Neurologist actually, so she did a Beta Amyloid blood test and said because of that I have dementia along with MCI, then had another cognitive test at just age related dementia. Anyone else have similar symptom? Also wanted me to get on infusion, which I’m against.

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Replies to "Did anyone get a pet scan? I also in early stage have a voice difficulty problem..."
pb50 | @pb50 | May 20 11:23am

@janieohrn76

I did not have PET because my doc didn't see the point if I had already ruled out taking the new risky drug. I had an MRI that was unremarkable for age. I also had blood tests that revealed I already have markers of alzheimer’s showing in my blood (the TAO test) And my neuropsych tests revealed mild memory and type-specific learning deficiency. Thus the diagnosis of mild neurocognitive disorder.

I went into this to document where i may be on the Alzheimer’s Continuum and to gather clinical evidence necessary to determine my eligibility for entry into the west virginia trial. Turns out my genetics were APOE 3 & 4. And that little “4” excludes me. The genetic result means there is some inherent risk of Brain bleed. And the drug used in the trial once they use ultrasound to pry open the blood brain barrier also introduces brain bleed risk. The double risk excludes me from the trial.

So its a question now of how fast I progress. My neurologist is bored with me so I see him in a year. Que Sera.

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