At age 14 my daughter was diagnosed with JME-Juvenile Myoclonic Epilepsy. She experienced horrible depression and Keppra made her psychotic, we tried Lamictal and she got a horrible rash Stevens-Johnson syndrome, then topamax made her lose her hearing and she suddenly couldn’t read well and understand what she was reading, then finally I told neuro to put her on zonisamide which was working for her brother at the time and it was a little better. We had to add ethoximide and I had to adjust those two meds until she was where she needed to be. Last weekend , she graduated from UC Berkeley with a double major in psych and social work and at age 22 she finally could get her drivers license. It took her about 3-4 years to accept. The final time she accepted it, she saw a video of herself seizing and how it started for why we made a big deal sometimes.

I let her live her life but she needed to know she needs be careful with alcohol, making sure not dehydrated or lack of sleep etc That’s the best you can do. She’s an adult now and I need to trust her.