Hi Colleen, Dawn, Hopeful and others, I've been in the Care Center now almost a week and will hopefully be getting a room on 3rd. floor when an opening occurs. I haven't been as active, since my energy has gone down, with weight and longer span to think; likely from brain tubers. Rest has increased and a number of others have as well--as my Hospice worker yesterday has been explaining "that many of these changes aren't out of the norm during the process of dying." That too, is another reason I sought to acquaint people with, or about these things between Palliative Care--Hospice Care. Understanding my seizure conditions I've had 77+ years has also helped me learn about psychoneurological changes that may take place aside from my cancer. Something else, I spoke with Hospice Nurse and man handling adult care, etc., who said "since you've used a computer as a part of your daily routine; we would suggest you get a laptop, so as to continue its use, games, communication, etc. that will help you." So having less energy to make it to this computer, I can use a laptop in my room, or lobby across from it. Adjustments to daily changes is something else that will require time and patience amidst some irritability which also takes place during these times.

irvkay312

@irvkay312 Sending you a virtual BIG Hug!!

Yes, I've been in room 266 East since last Friday and working with Hospice<br>team until a move to 3rd. floor is possible. Fortunately,<br> I'm teaching many aides and some nurses about tuberous sclerosis, which is<br>rare and urging members of Mayo Connect to learn about chemo adverse<br>affects and interactions that can happen after its administration. My<br>primary problem was Stage 3 Chronic Kidney Disease from Adriamyacin and<br>Streptozocin chemo. From that after diet went down, weight went down, and<br>other elements were lost on a regular basis including irritability, etc.<br>Learning these stages of Hospice also helps a lot.<br><br>irvkay312<br>