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I feel like I’m slowly dying and nobody is helping

Post-COVID Recovery & COVID-19 | Last Active: 4 days ago | Replies (70)
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@j77

Your story is so similar to mine.I basically went into a permanent fight or flight because covid attacked my central nervous system and everything really.I could not eat,swallow,go to the bathroom,sleep.It was like I was a human vegetable.I was very healthy and exercised all the time and now I am basically disabled.I know my body so well and knew there was something right away when I had a reaction and all of a sudden a stiff neck and could not swallow.I think covid attacked my spine which led to a ton of other issues.I just think it is so crazy that conventional tests can't pick up on all of the symptoms.Somehow it hides.

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Replies to "Your story is so similar to mine.I basically went into a permanent fight or flight because..."
repl | @repl | May 20, 2024

It’s hard to not be validated when you know something is going on with your body!

I think it’s hard being the forerunners for long covid as doctors don’t know what tests to do to accurately assess/diagnose. And even when they do, they are having to make things up as they go since it’s so new!

They are finding that reactivation of normally dormant illnesses are causing CNS to be attacked, etc. the autonomic nervous system gets altered and attacked causing ALL kinds of symptoms and issues.

I definitely recommend finding a chronic disease specialist who specializes in chronic fatigue syndromes and the like. They should be someone who will be testing for underlying deactivations of Lymes, Bartonella, EBV, CMV, chickenpox, etc. AND bacterial infections

Big Hugs to you going through this. It’s hard. I’m writing this on the couch lol.

some days it feels like there’s no end in sight. Then there are days where hope reigns supreme and I have 3 days of glimpsing normal…
I try to hold onto that if I have 3 days of better then it could happen even more. I take one day at a time and try to cheer for the good days, and hug myself for the down ones.

I do believe there are answers and we will find them soon 🙏🏻❤️

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