← Return to Former dr. said petit mal seizures, new doc thinks maybe not seizures

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@irvkay312

From a history of life with epilepsy and having been through nearly all items you note; my first question would be why is she trying to take him off the Keppra? Adverse reaction, age, growth, diet, not adequete control of seizures? etc. From that point I would seek to understand type of epilepsy classed as, along with age and normal or abnormal growth factors. I note this only because sometimes ones body and growth will exceed others and in so doing have an ability to change many systematic factors. Then of course would be a regular and updated Comp;ete Blood Panel to check for any overages or shortages in the persons blood. An updated Electroencephliagram could evaluate the efficiciency of brain operation to stimulus; noise, lights, do this, that, etc. so as to narrow the gap. Are they getting adequate rest during this growth stage, or using too much energy, so as to be shortened? A video monitoring test is expensive, but may be worth it. They'll attacch electrodes to the skull with about a 50 foot cord. Anything done, whether playing games, eating, taking medicines, being thirsty or even using the bathroom--will note on paper graphs the operation of the respective part of the brain responsible for doing that. From the baseline--blood CBC, EEG, and stimulus before, during or after a seizure help the doctor evaluate the medicince to use or prescribe.

If the person has done well on Keppra, some minor dosage adjustments may be needed. If you are still in doubt, or don't get the doctor to properly explain the reasons for this to you--seek a second opinion and see if there is applicable reasoning for their differences of opinion. I've dealt with epilepsy through 4 different stages and am now 77+ years old. Some may even need to be on a trial and error basis due to the complexity of the brain or triggers that can initiate a seizure. Good Luck.

irvkay312

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Replies to "From a history of life with epilepsy and having been through nearly all items you note;..."

We believe he may have been have nocturnal seizures and last month from his description of an incident at a supply house he may have had a simple partial seizure. He is diagnosed as having right temporal lobe epilepsy. he has done the home eeg/ video monitoring after the initial eeg, sleep deprivation eeg and tilt table test. This was done 2014 after the initial seizure Dec 19 2013. He can not tolerate the recommended dose of keppra er 1000 mg. He was only taking 500 mg keppra er for the last two years. Was hoping vimpat would work but he has complained of the side effect, he has never looked up the side effect but I have. She wants him to take vimpat 200mg in morning and night but so far at 100mg morning and night with keppra 250mg at night the side effects are effecting him. What other studies can there be? I have looked up information on temporal lobe epilepsy and recently contacted epilepsy foundation in St. louis, Mo trying to get more information. They recommended adkins diet. We eat low fat diet and he is eating fruits and veggies, also exercises frequently. Our meat is locally grown and butchered very lean meat. It is crazy we were at Mayo in Rochester in Dec 2008 for other medical problems he had after pulmonary embolisms in Dec 2007.

Hi @sall. If you would like to consider a second opinion or have a review of your husband's medical history, please contact Mayo Clinic http://mayocl.in/1mtmR63.

U.S. National Institutes of Health maintains a database of all clinical trials. It's quite simple to use https://clinicaltrials.gov/.

I am considering second opinion. Waiting to see what else is suggested for now because he has a few more weeks of work still. The summer is his busy time. He is a HVAC Tech and they are busy. Anyway he is in blood clots study from 2008 trip to Mayo and have considered asking to be sent the for study on epilepsy.