I've yet to find the "perfect" doctor for my particular brand of PN. It's not that I've met with many, only a half dozen or so. Each begins with a sincere willingness to help. Still, that willingness starts to fade, replaced by regret (too easily mistaken by some patients as indifference) as PN's unsolvability raises its ugly head.
As some here on Connect know, I'm currently recovering from sepsis. If anyone had told me I'd one day find myself dealing with a condition more troublesome than my PN, I'd not have believed them––but today I would! Sepsis has laid me lower than my PN ever had. I find myself longing to get back to merely dealing with my PN. (I just used the word "merely." "Merely," and PN? That's bizarre in itself.)
I wish you the very best, Fala. Better days lie ahead. I know they do.
The odds are pretty high that I contracted my sepsis bug before my hospitalization. The more I consider the evidence, the reduced sensitivity in my feet, thanks to my PN, resulted in an undetected cut (i.e., sepsis entry point). I have no quarrel with either my doctors or the hospital.
I've yet to find the "perfect" doctor for my particular brand of PN. It's not that I've met with many, only a half dozen or so. Each begins with a sincere willingness to help. Still, that willingness starts to fade, replaced by regret (too easily mistaken by some patients as indifference) as PN's unsolvability raises its ugly head.
As some here on Connect know, I'm currently recovering from sepsis. If anyone had told me I'd one day find myself dealing with a condition more troublesome than my PN, I'd not have believed them––but today I would! Sepsis has laid me lower than my PN ever had. I find myself longing to get back to merely dealing with my PN. (I just used the word "merely." "Merely," and PN? That's bizarre in itself.)
I wish you the very best, Fala. Better days lie ahead. I know they do.
Hi Ray,
It's nice to hear from you. I am SO sorry to hear you had Sepsis. At least there is a recovery from that, unlike PN! Bless you, so sorry you had to go through that! For whatever reason, my pain from PN has increased in the past few weeks. I know the pain travels further up my calves on a steady basis, this this is new... gimmie a break! Before I took any medication for PN pain, I had to use a walker to take some of the pressure off my feet. I always have to go to the "It could be worse" thought! It's a nasty disease no matter how it effects us all. Best wishes!
Hi Ray,
It's nice to hear from you. I am SO sorry to hear you had Sepsis. At least there is a recovery from that, unlike PN! Bless you, so sorry you had to go through that! For whatever reason, my pain from PN has increased in the past few weeks. I know the pain travels further up my calves on a steady basis, this this is new... gimmie a break! Before I took any medication for PN pain, I had to use a walker to take some of the pressure off my feet. I always have to go to the "It could be worse" thought! It's a nasty disease no matter how it effects us all. Best wishes!
Your message again reminds me how fortunate I am my PN merely disturbs my balance and doesn't cause me pain. From the many posts I've read by our fellow PN'ers, I've come to understand I am in a most lucky minority. Of course, my situation may change at any time. I'm realistic enough to accept that.
Well, I'd best sign off. My sepsis PT person is coming at 8 tomorrow morning, and I'd like to do some of my "homework" exercises yet this evening.
The odds are pretty high that I contracted my sepsis bug before my hospitalization. The more I consider the evidence, the reduced sensitivity in my feet, thanks to my PN, resulted in an undetected cut (i.e., sepsis entry point). I have no quarrel with either my doctors or the hospital.
Hi. I'm probably posting this in the wrong thread, but what meds do people recommend/that have worked when and if your PN goes off the charts and methods normally used to bring down the pain don't work? I had a bad illness a little while ago, fever and all, and for some reason it launched the pain in my feet and lower legs to an ungodly level and kept it there for hours. I'm talking almost fetal position pain.
I normally don't seek out med solutions to all my problems, but when I get to such levels of persistent pain, I'll consider just about anything for relief. I'm not talking about my regular cyclical PN pain. I'm talking about when it goes completely off the charts, like it did recently.
Hi
We all cannot possibly read all the posts and responses. At the same time, I don't like repeating myself anymore than anyone likes to read them all over again... but someone asked. That said, with many, many trial and error confessions, I will say again, here's the ONLY thing that works for me.
(I was eligible for a medical card)
I use THC cream on my feet every morning and every night before bed! I will admit, I tried CBD capsules during the day thinking it would relieve my daily pain, but nope, no pain relief. Puzzles me, but Forget It, and it is expensive! A little relief is better than none. Ideas always welcomed!?!
Best of Luck to you all!
Your message again reminds me how fortunate I am my PN merely disturbs my balance and doesn't cause me pain. From the many posts I've read by our fellow PN'ers, I've come to understand I am in a most lucky minority. Of course, my situation may change at any time. I'm realistic enough to accept that.
Well, I'd best sign off. My sepsis PT person is coming at 8 tomorrow morning, and I'd like to do some of my "homework" exercises yet this evening.
Ray - Agree 100% about being fortunate not to have pain. I read about many on here dealing with how to calm down the pain, if possible, and all the various possible remedies. Many unsuccessful. I experience the same as you, now balance is my main issue which I attribute to the increase in numbness. I have bad knees and because of my possible trips and/or falls, knee replacement is out of the question. I have other weird symptoms all tied to PN which is why I believe Mayo in Rochester accepted me. My PN is still primarily below knees to toes. I see my primary doc in 45 days, going to discuss going into PT....again. I found balance therapy in PT helpful. Take care of that foot. Ed
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Doctors and hospitals are a death sentence. Septic and no excuse but dirty equipment and bad help................
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1 ReactionThe odds are pretty high that I contracted my sepsis bug before my hospitalization. The more I consider the evidence, the reduced sensitivity in my feet, thanks to my PN, resulted in an undetected cut (i.e., sepsis entry point). I have no quarrel with either my doctors or the hospital.
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1 ReactionHi Ray,
It's nice to hear from you. I am SO sorry to hear you had Sepsis. At least there is a recovery from that, unlike PN! Bless you, so sorry you had to go through that! For whatever reason, my pain from PN has increased in the past few weeks. I know the pain travels further up my calves on a steady basis, this this is new... gimmie a break! Before I took any medication for PN pain, I had to use a walker to take some of the pressure off my feet. I always have to go to the "It could be worse" thought! It's a nasty disease no matter how it effects us all. Best wishes!
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1 ReactionHello again, Fala
Your message again reminds me how fortunate I am my PN merely disturbs my balance and doesn't cause me pain. From the many posts I've read by our fellow PN'ers, I've come to understand I am in a most lucky minority. Of course, my situation may change at any time. I'm realistic enough to accept that.
Well, I'd best sign off. My sepsis PT person is coming at 8 tomorrow morning, and I'd like to do some of my "homework" exercises yet this evening.
Cheers!
Ray
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1 ReactionGood for you..........
It's true..........
Hi. I'm probably posting this in the wrong thread, but what meds do people recommend/that have worked when and if your PN goes off the charts and methods normally used to bring down the pain don't work? I had a bad illness a little while ago, fever and all, and for some reason it launched the pain in my feet and lower legs to an ungodly level and kept it there for hours. I'm talking almost fetal position pain.
I normally don't seek out med solutions to all my problems, but when I get to such levels of persistent pain, I'll consider just about anything for relief. I'm not talking about my regular cyclical PN pain. I'm talking about when it goes completely off the charts, like it did recently.
-
Like -
Helpful -
Hug
1 ReactionHi
We all cannot possibly read all the posts and responses. At the same time, I don't like repeating myself anymore than anyone likes to read them all over again... but someone asked. That said, with many, many trial and error confessions, I will say again, here's the ONLY thing that works for me.
(I was eligible for a medical card)
I use THC cream on my feet every morning and every night before bed! I will admit, I tried CBD capsules during the day thinking it would relieve my daily pain, but nope, no pain relief. Puzzles me, but Forget It, and it is expensive! A little relief is better than none. Ideas always welcomed!?!
Best of Luck to you all!
-
Like -
Helpful -
Hug
2 ReactionsRay - Agree 100% about being fortunate not to have pain. I read about many on here dealing with how to calm down the pain, if possible, and all the various possible remedies. Many unsuccessful. I experience the same as you, now balance is my main issue which I attribute to the increase in numbness. I have bad knees and because of my possible trips and/or falls, knee replacement is out of the question. I have other weird symptoms all tied to PN which is why I believe Mayo in Rochester accepted me. My PN is still primarily below knees to toes. I see my primary doc in 45 days, going to discuss going into PT....again. I found balance therapy in PT helpful. Take care of that foot. Ed
-
Like -
Helpful -
Hug
3 Reactions