← Return to Former dr. said petit mal seizures, new doc thinks maybe not seizures

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@sall

We went to our follow up with our epilepsy Dr. and she is trying to wean him off of levetracitam/ keppra and replace it with vimpat. So far he has experienced the common side effects. He has done the 72 hour EEG/VIDEO at home, EEGS and sleep deprivation EEG. She mention sending him to a university for a study to see if they could trigger a seizure or something to identify what is going on. Anybody have any ideals. He is taking vimpat 100 mg am/pm and 250 mg of levitracitam pm.

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Replies to "We went to our follow up with our epilepsy Dr. and she is trying to wean..."

I've been on 1 med or another for 40 years: Dilantin then tegretol then lamotrigine and now a combination lamotrigine (250mg/2x day) and Keppra (500mg/2x a day). The seizures were always mild. I've been seizure free, as far as I can tell, for at least 5 years, ever since I started the current regimen. I've been on medication so long I don't know what I'd be like without it, but if I forget to take it in the morning, I move much faster through the day and get a lot more done. I would like to see if I can be weaned. My neurologist is suggesting 5 day inpatient continuous eeg (don't know if video) test during which the medication will be reduced or stopped. I would like to know if I can function at a higher level. It takes me longer to get things done. I'm also forgetful, maybe a function of age (59) but maybe not. Is this a good reason to undergo the inpatient test? Is it possible that I am no longer seizure prone, even without the medication? Work takes all my time. Maybe I could live a fuller life. I welcome input.

As I wrote in a previou s post on seizures which I've had for over 77 1/2 years now as well as being in hospice for pancreatic cancer "to me it doesn't seem like someone did their homework on adverse affects of this medicince, or reporting its affects to the doctor." I'm on it now for quite a few months and one of the manufacturers first notes were "may cause mood swings, problems sleeping and other factors of a similar nature--if such happen contact your doctor immediately."

My personal view is that this medicine is not conducine for this persons treatment. They may have to re-evaluate other medicines even on a trial and error basis to attain the proper one for control.

Additionally, you could seek a second opinion, by another doctor to see if someting was overlooked in prescribing this medicine.

Good Luck.

irvkay312 Mentor