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Bladder Cancer Group: Introduce yourself and connect with others

Bladder Cancer | Last Active: 1 day ago | Replies (153)
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@talltxlady

Hi there, my name is Melissa, I'm 55 yo. Was diagnosed with NMIBC of the aggressive type in 11/21. I've taken about 27 rounds of immunotherapy (BCG). The last BCG was in March. My cystoscopies remain negative. At the beginning I did have one that was suspicious and had to undergo another surgery in 2022 for it, but they have all stayed negative thank God. I go back in September to MD Anderson for another cystoscopy and my doctor said we would decide at that time if I will need any more BCG or not.
I do have a host of other problems as well. I have 3 autoimmune diseases (Hashimotos, Reynaud's and Sjogrens syndrome), plantar and palmer fibromatosis, severe back degeneration with scoliosis, DDD and more (can't remember it all!)
I am happy to be here and feel blessed this aggressive bladder cancer has not showed it's ugly head again. Stay strong y'all! We are strong people :)) 🙏

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Replies to "Hi there, my name is Melissa, I'm 55 yo. Was diagnosed with NMIBC of the aggressive..."
moose63 | @moose63 | May 19 4:09pm

I had my bladder removed about three and one-half years ago. One year later, cancer showed up in lymph nodes in my abdomen area. I was on chemotherapy for 4 months with no change. Went on immunotherapy, Keytruda, with great results . I will not ever be cancer free, but get to stop treatment at the end of June. Will have a scan every three months and will go back on treatment when necessary. Keytruda has been a blessing from God for me. Might be something to consider if you need further treatment ,

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george36 | @george36 | Dec 1 2:09pm

Hi: My name is Phyllis and I just have a few questions.
I had a UTI about a month ago and the dr. sent me to get my urine checked. Unfortionately they forgot to call me with the results until last week. They said there was blood in my urine and The dr. referred me to a urologist. My question is: Does that mean that they suspect bladder cancer?
I do have symptoms of bladder cancer but they could not get me an appointment until January 16th 2025. I have read a lot about this and I decided to at least do an alternative treatment until I can see the doctor.
I'm doing the lemon juice and baking soda with 8 oz. water and also rubbing frankensence oil on my tummy. At least I don't think these alternatives should hurt since I have to wait so long to get to see the doctor. Has anybody that you know done one of these alternative treatments and it helped?

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