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Hesitant to begin drug treatment for my osteoporosis
Osteoporosis & Bone Health | Last Active: Jun 5 8:10am | Replies (67)Comment receiving replies
@windyshores I’m new to this chat but am so appreciative of your knowledge and generous advice to us all!
I may have missed your mention of it in a previous posting, but what’s your take on Reclast? I’ve had lumbar spine -3.5 for several years now and just saw a highly-respected bone specialist for the first time — she recommended a half-dose infusion of Reclast once a year (I’m 62). I’m already experiencing difficult side effects from 6 months on letrozole (breast cancer diagnosis last summer) and am quite frankly terrified of feeling even worse, so I’ve been putting off trying Reclast. Your description of vertebral fracture is sobering, however, as I live a fairly active life in NYC where walking a lot and carrying groceries etc is a daily necessity. I’d be grateful for any thoughts you might share on Reclast. Thank you, in advance!!! I hope you’re enjoying a pleasant weekend
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@risagee I did 5 years letrozole and lost bone density. I also had osteoporosis at the start but my doctor was afraid to prescribe Reclast due to my afib and kidneys.
Most cancer patients on aromatase inhibitors do Reclast (Or Zometa, which is the same drug with different dosing). It may have some protective effect with bone metastases as well as increasing bone density.
If you were not on letrozole I would ask why they are not putting you on a bone builder like Tymlos, Forteo or Evenity. I did two years of Tymlos when I finished.
Perhaps doctors are afraid a bone builder will encourage cancer spread-? The bone cancer black box warning was lifted and not a single patient has gotten bone cancer from these osteoporosis meds.
I am curious. Your DEXA score would justify a bone builder vs Reclast but it seems Reclast is still being given to patients on AI's. I would be curious to know what the doctor says if you ask about Forteo, Tymlos or Evenity in your situation. Let us know!