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@johnbishop

Hello @smalone59, Welcome to Connect. I can't imagine how difficult it has to be for you dealing with the different health struggles 30 plus years. I know it has to be discouraging. I'm hoping that connecting with others may help provide some answers for you. There are a couple of discussions that I think you might find helpful.

--- Limited Scleroderma or CREST Syndrome: What helps?
https://connect.mayoclinic.org/discussion/crest-syndrome/
--- FMD (fibromuscular dysplasia): https://connect.mayoclinic.org/discussion/fmd/

You mentioned having an upcoming appointment with a vascular surgeon. One thing that has helped many including myself is take a list of questions you have with you to appointments. There are some good tools to help you plan your conversation on the Patient Revolution website here - https://www.patientrevolution.org/tools.

When do you see the vascular surgeon?

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Replies to "Hello @smalone59, Welcome to Connect. I can't imagine how difficult it has to be for you..."

The end of June 25th I think.

I relooked it is June at 1:30 they want to see if my neck is bad enough to require stints put in both sides. Instead of my neck veins being straight they look like a messed-up road map, to many twists and turns. Just one more thing, I should be used to it by now.